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American Bone Health has closed.  However, on October 1, 2023, we joined forces with the Bone Health and Osteoporosis Foundation (BHOF) so that BHOF could continue offering all of the important programs and services created by American Bone Health. Please visit www.bonehealthandosteoporosis.org for more information about the Bone Health and Osteoporosis Foundation.

BoneSense® Speaker Series™

Introducing the BoneSense® Speaker Series™, a virtual program where members of American Bone Health’s Medical and Scientific Advisory Board and other experts talk about what’s new in bone health. Hosted by American Bone Health Executive Director Cheryl Hostinak.

Adult Hypophosphatasia: An Uncommon Bone Disease Hiding in Plain Sight

Virtual Live Event
Tuesday, April 26, 2022
7:30-8:30 p.m. ET/ 4:30-5:30 p.m. PT

Hypophosphatasia (HPP) is a genetic disorder in which the bones and teeth do not develop properly. Symptoms can range from mild to severe. In rare cases when HPP appears in newborns, it can be fatal. When HPP appears in adults, it can cause low bone density and fractures that appear to be signs of osteoporosis. This misdiagnosis, however, can lead to the wrong kind of treatment, which can even make matters worse.

Join us for a virtual live event featuring a Q&A-style conversation with American Bone Health Executive Director Cheryl Hostinak, a physician who has diagnosed and treated people with HPP, and a woman who will share her personal experience with the disease. You will learn why some cases of HPP are confused with osteoporosis, and how a common lab test can help detect HPP and guide successful treatment.

Register Now

GUESTS

Dr. Peter J. Tebben, is an Associate Professor of Medicine and Pediatrics at Mayo Clinic in Rochester, Minn. He holds a joint appointment in the Divisions of Endocrinology in the Departments of Internal Medicine and Pediatrics. Dr. Tebben earned his medical degree at the University of Kansas and completed residency in Internal Medicine and Pediatrics at the University of Minnesota. He completed his training at Mayo Clinic in Endocrinology where he now serves as a consultant in the Bone Core Group. He cares for both children and adults with heritable and acquired skeletal dysplasia and metabolic bone disorders.

Nellie Tayloe Sanders was diagnosed with adult hypophosphatasia in 2018, she has been a strong advocate for others living with the disease. A native of Washington, D.C., Sanders has been part of the leadership team at the Center of Family Love in Oklahoma since 2013. She currently serves as the organization’s Vice President of Philanthropy. The Center of Family Love is a nonprofit organization that provides lifelong experiences and state-of-the-art care for residents who conquer intellectual and physical disabilities. She and her husband have two sons, Davis and Walker.

Supported by Alexion

Alexion supports our educational mission with unrestricted financial contributions. They have no input over any educational content.

Register to Attend the Live Webinar

Tuesday, April 26, 2022
7:30 p.m. ET/ 4:30 p.m. PT